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Wednesday, October 29, 2008

October 28, 2008: Day 58 (Going home on Sunday?)

The tentative plan is that we are taking Aidan home on Sunday!! That is if Aidan wants to and cooperates. For this to happen:
- Aidan cannot have any heart or apnea spells.
- He needs to pass his car seat challenge. This is a test where Aidan is strapped in his car seat, and needs to remain calm with no spells for 1 hour. This is to make sure that we can be able to take him home and to the pediatrician. We are planning for this tomorrow night.
- We need to get set up and trained on the home oxygen equipment.
- He needs to remain stable on the low-flow cannula, and the doctors and nurses need to determine what the settings should be for us when we are at home.

First thing this morning, they took Aidan off the high-flow cannula, and put him on a low-flow device, that will pipe 100% oxygen at a very low rate. They started Aidan at 75 ml/minute, but he was saturating too high, so they lowered him. And he still saturated too high. So they switched out the flow-meter for one that went all they way down to 25 ml/minute. At 25 ml, he *still* saturated too high, so they turned that meter all they way down, off the scale. He is now stable, with blood saturations between 85-98 with the low-flow cannula on its very-lowest setting!!! This is better than Dr Kaempf expected. This was great news.

At this point, Aidan can survive on room air when he is calm, and peacefully sleeping. He really only needs oxygen (and a very little amount) for feeding, or when he is fussy.

Aidan gained 25 grams to 2310 tonight.

About my 2 worries for the today:
1. Aidan had his head sonogram today, but the results didn't come back yet. So we need to wait for tomorrow.
2. The opthamologist didn't make it to the NICU, so Aidan will be checked in the morning. So we need to wait for tomorrow on this on too.

I guess I these are both now worries for tomorrow...

Pictures and videos from today.

No more high-flow cannula:



The low-flow regulator:



Much easier to handle him now:





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